Director, Neuromuscular, US Patient Advocacy

DTX Pharma, a Novartis Company

DTX Pharma, a Novartis Company

United States · East Hanover, NJ, USA

USD 152,600-283,400 / year + Equity

Posted on Jun 6, 2026

Band

Level 6


Job Description Summary

The Director, Neuromuscular, US Patient Advocacy sets strategy and leads collaboration with relevant Neuromuscular patient communities (including but not limited to DMD, DM-1, FSHD) to understand unmet needs that inform business strategy, mobilize patients to seek the best care and reduce access barriers.


Job Description

Job Responsibilities:

  • Build trusted, long-term relationships with patient organizations and communities in focused neuromuscular disease areas (including but not limited to DMD, DM-1, FSHD), centered on two-way communications and collaborations to advance shared priorities
  • Partner with patient organizations to educate and mobilize patients to seek optimal care and elevate the voice of patients/caregivers among HCP, policymaker and payer audiences, as appropriate
  • Develop and execute integrated patient advocacy strategies (including launches) aligned to critical business and corporate priorities based on deep understanding of the patient/carer experience and unmet needs and the competitive landscape
  • Ensure patient/carer insights and implications for launch and growth brands are systematically embedded across Corporate Affairs work and with cross-functional partners
  • Lead Patient Advocacy TA team, manage and develop talent
  • Utilize Corporate Affairs function analytics and insights framework within scope of work
  • Anticipate and manage risk to Novartis and brand reputation, shaping strategy and initiatives with business partners and senior leaders
  • Model and encourage the responsible adoption of AI enabled tools to strengthen advocacy excellence (in planning and execution), efficiency, and insight generation
  • Develop AI-enabled educational programs and resources that address unmet patient and caregiver needs and drive business objectives

Essential Requirements:

  • Bachelor’s degree required
  • 12+ years of experience in patient advocacy or related discipline with a healthcare and/or pharmaceutical background, prior experience in neuromuscular and rare disease areas preferred
  • 2+ years in industry patient advocacy role required
  • Demonstrated ability to build trusting relationships with patient organizations professional associations and other stakeholders
  • Strong commercial and launch experience

Desirable Requirements:

  • Understanding of US policy, regulatory, compliance, and competitive landscape
  • Leadership presence and ability to influence at senior management level and across diverse set of matrix cross-functional partners
  • Strong business acumen, critical thinking and collaborative enterprise mindset
  • Excellent written and verbal communication skills
  • Excellent people & communication skills
  • Ability to effectively analyze market data to inform strategy
  • Ability to inspire and lead teams
  • Ability to multi-task and manage complex issues into simple effective solutions
  • Ability to operate within a dynamic & ambiguous environment

Benefits & Rewards

The salary for this position is expected to range between $152,600 and $283,400 per year. The final salary offered is determined based on factors like, but not limited to, relevant skills and experience, and upon joining Novartis will be reviewed periodically. Novartis may change the published salary range based on company and market factors. Your compensation will include a performance-based cash incentive and, depending on the level of the role, eligibility to be considered for annual equity awards. US-based eligible employees will receive a comprehensive benefits package that includes health, life and disability benefits, a 401(k) with company contribution and match, and a variety of other benefits. In addition, employees are eligible for a generous time off package including vacation, personal days, holidays and other leaves.

Why Novartis: Helping people with disease and their families takes more than innovative science. It takes a community of smart, passionate people like you. Collaborating, supporting and inspiring each other. Combining to achieve breakthroughs that change patients’ lives. Ready to create a brighter future together? https://www.novartis.com/about/strategy/people-and-culture

Join our Novartis Network: Not the right Novartis role for you? Sign up to our talent community to stay connected and learn about suitable career opportunities as soon as they come up: https://talentnetwork.novartis.com/network

Benefits and Rewards: Read our handbook to learn about all the ways we’ll help you thrive personally and professionally: https://www.novartis.com/careers/benefits-rewards


EEO Statement:

The Novartis Group of Companies are Equal Opportunity Employers. We do not discriminate in recruitment, hiring, training, promotion or other employment practices for reasons of race, color, religion, gender, national origin, age, sexual orientation, gender identity or expression, marital or veteran status, disability, or any other legally protected status. We strive to create an inclusive workplace that cultivates bold innovation through collaboration and empowers our people to unleash their full potential.


Accessibility and reasonable accommodations

The Novartis Group of Companies are committed to working with and providing reasonable accommodation to individuals with disabilities. If, because of a medical condition or disability, you need a reasonable accommodation for any part of the application process, or in order to perform the essential functions of a position, please send an e-mail to tas.nacomms@novartis.com call +1 (877)395-2339 and let us know the nature of your request and your contact information. Please include the job requisition number in your message.

https://www.novartis.com/careers/careers-research/notice-all-applicants-us-job-openings



Salary Range

$152,600.00 - $283,400.00


Skills Desired

Affiliate Marketing, Communication Medium, Corporate Communication, Creativity, Curious Mindset, Employee Engagement, Internal Communications (Ic), Interviewing Skills, Marketing, Media Relations, Public Affairs, Social Media, Strategic Communications, W3